No one understands the full implications of this illness until it hits them not only physical, mentally but financially as well.
This is why I campaign so hard to help others who are worse off than me and who really need the help.
I don't do it for reward I do this because it keeps me going.
The last couple of weeks have been hard for me not being able to go out and do any charity work has hit me hard but watching videos back of what I have achieved and am achieving is helping.
There is still much more I can do and I will do to help others.
I am not going to let my physical or mental state let me give up. I am determined to get through the fight for bureaucracy that chronically sick patients fight daily.
I want a life without having to fill in long horrendous complicated forms and that once someone gets a diagnosis they should automatically be given the benefits they require. Not have to have an examination with a 32 page report which is incorrect posted out to them after a certain period of time being on a certain benefit.